My program of research focuses on health care for acutely and chronically ill infants and children, in primary, secondary and tertiary care settings, with a particular emphasis on pain assessment and management. My most recent research focuses on innovative strategies to improve family-centered care and enhance the partnership between parents and health care providers to ensure children receive optimal health care before, during and after hospitalization.
Honors and Awards
Jack and Elaine Koehn Endowed Chair in Pediatric Nursing, School of Nursing, University of California, San Francisco, 2014
M.S., 1983 - Nursing, University of California, San Francisco
Evaluating the effect of Family Integrated Care on maternal stress and anxiety in neonatal intensive care units.
Information and power: Women of color's experiences interacting with health care providers in pregnancy and birth.
The evolution of family-centered care: From supporting parent-delivered interventions to a model of family integrated care.
Pain-specific Reactions or Indicators of a General Stress Response? Investigating the Discriminant Validity of Five Well-established Neonatal Pain Assessment Tools.
Neonatologists can impede or support parents' participation in decision-making during medical rounds in neonatal intensive care units.
Health care experiences of pregnant, birthing and postnatal women of color at risk for preterm birth.
Online information for parents caring for their premature baby at home: A focus group study and systematic web search.
A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting.
The Perinatal-Neonatal Care Journey for Parents of Preterm Infants: What Is Working and What Can Be Improved.
Dynamic outcome prediction in a socio-demographically diverse population-based cohort of extremely preterm neonates.
Withdrawal Assessment Tool-1 Monitoring in PICU: A Multicenter Study on Iatrogenic Withdrawal Syndrome.
Demographic, Clinical, and Health System Characteristics Associated With Pain Assessment Documentation and Pain Severity in U.S. Military Patients in Combat Zone Emergency Departments, 2010-2013.
Prevalence and Predictors of Prehospital Pain Assessment and Analgesic Use in Military Trauma Patients, 2010-2013.
Direct versus indirect psychosocial and behavioural interventions to prevent suicide and suicide attempts: a systematic review and meta-analysis.
Parent education discharge instruction program for care of children at home after cardiac surgery in Southern India.
Nurse and parent perceptions associated with the Parent Education Discharge Instruction Programme in southern India.
Neonatal Intensive Care Nurses' Perceptions of Parental Participation in Infant Pain Management: A Comparative Focus Group Study.
A debate on the proposition that self-report is the gold standard in assessment of pediatric pain intensity.
Usability and knowledge testing of educational tools about infant vaccination pain management directed to postnatal nurses.
Protocolized sedation vs usual care in pediatric patients mechanically ventilated for acute respiratory failure: a randomized clinical trial.
Predictors of parent post-traumatic stress symptoms after child hospitalization on general pediatric wards: a prospective cohort study.
The relationship between frequency of obstetric ultrasound scans and birthplace preference--a case control study.
Parents' attitudes toward the use of complementary therapy by their children with moderate or severe cerebral palsy.
Accommodating families during a child's hospital stay: implications for family experience and perceptions of outcomes.
Sleep-wake cycling in a neonate admitted to the NICU: a video-EEG case study during hypothermia treatment.
Exploring the nature of interprofessional collaboration and family member involvement in an intensive care context.
Lack of uniformity in the clinical assessment of children with lipomyelomeningocele: a review of the literature and recommendations for the future.
Acceptability of a minimally invasive perinatal/paediatric autopsy: healthcare professionals' views and implications for practice.
Knowledge translation of the HELPinKIDS clinical practice guideline for managing childhood vaccination pain: usability and knowledge uptake of educational materials directed to new parents.
How parents make sense of their young children's expressions of everyday pain: a qualitative analysis.
Gaining confidence and perspective: a phenomenological study of mothers' lived experiences caring for infants at home after neonatal unit discharge.
Validity and generalizability of the Withdrawal Assessment Tool-1 (WAT-1) for monitoring iatrogenic withdrawal syndrome in pediatric patients.
Special needs require special attention: a pilot project implementing the paediatric pain profile for children with profound neurological impairment in an in-patient setting following surgery.
Family support and family-centered care in the neonatal intensive care unit: origins, advances, impact.
Translating the tears: parents' use of behavioural cues to detect pain in normally developing young children with everyday minor illnesses or injuries.
From tears to words: the development of language to express pain in young children with everyday minor illnesses and injuries.
Influence of risk of neurological impairment and procedure invasiveness on health professionals' management of procedural pain in neonates.
Systematic review of paediatric alert criteria for identifying hospitalised children at risk of critical deterioration.
Study of the factors affecting health-related quality of life in adolescents after liver transplantation.
The experience of living with a chronic illness during adolescence: a critical review of the literature.
Long-term impact of neonatal intensive care and surgery on somatosensory perception in children born extremely preterm.
The Withdrawal Assessment Tool-1 (WAT-1): an assessment instrument for monitoring opioid and benzodiazepine withdrawal symptoms in pediatric patients.
Changes in physiological and behavioural pain indicators over time in preterm and term infants at risk for neurologic impairment.
The universe of developmental care: a new conceptual model for application in the neonatal intensive care unit.
In response to Foster J., Bidewell J., Buckmaster A., Lees S. & Henderson-Smart D. (2008) Parental stress and satisfaction in the non-tertiary special care nursery. Journal of Advanced Nursing61(5), 522-530.
Here's an idea: ask the users! Young people's views on navigation, design and content of a health information website.
Helping parents to help their child with procedural and everyday pain: practical, evidence-based advice.
Intra-operative imaging in paediatric cardiac surgery: the reactions of parents who requested and watched a video of the surgery performed on their child.
Parental pain expectancy as a mediator between child expected and experienced procedure-related pain intensity during painful medical procedures.
Making pain assessment more accessible to children and parents: can greater involvement improve the quality of care?
Determining behavioural and physiological responses to pain in infants at risk for neurological impairment.
The quality of parental consent for research with children: a prospective repeated measure self-report survey.
Identification of pain indicators for infants at risk for neurological impairment: a Delphi consensus study.
Judgments of pain in the neonatal intensive care setting: a survey of direct care staffs' perceptions of pain in infants at risk for neurological impairment.
A critical review of the health-related quality of life of children and adolescents after liver transplantation.
The symptom experience of hospitalised Chinese children and adolescents and relationship to pre-hospital factors and behaviour problems.
Ensuring quality information for patients: development and preliminary validation of a new instrument to improve the quality of written health care information.
Quality assurance for clinical research: challenges in implementing research governance in UK hospitals.
Are there opportunities to decrease nosocomial infection by choice of analgesic regimen? Evidence for immunity and pain interactions.
Culturally appropriate family assessment: analysis of the Family Assessment Device in a pediatric Chinese population.
Computer-taught coping techniques for venepuncture: preliminary findings from usability testing with children, parents and staff.
Successful toxoplasmosis prophylaxis after orthotopic cardiac transplantation with trimethoprim-sulfamethoxazole.
Assessment of sickle cell pain in children and young adults using the adolescent pediatric pain tool.
A pain in the act: musings on the meaning for critical care nurses of the pain management standards of the joint commission on accreditation of healthcare organizations.
Plasma norepinephrine levels, vagal tone index, and flexor reflex threshold in premature neonates receiving intravenous morphine during the postoperative period: a pilot study.
Review of research studies that evaluated the impact of treatment for childhood cancers on neurocognition and behavioral and social competence: nursing implications.
Somatization, anxiety and depression as measures of health-related quality of life of children/adolescents with cancer.
The efficacy of developmentally sensitive interventions and sucrose for relieving procedural pain in very low birth weight neonates.
Opioid withdrawal in neonates after continuous infusions of morphine or fentanyl during extracorporeal membrane oxygenation.
Recognition and management of neonates at risk for perinatally acquired infection with human immunodeficiency virus.
The use of intravenous opioids to provide analgesia in critically ill, premature neonates: a research critique.
Temporal dissociation of recovery from antinociceptive and motor effects following intrathecal administration of a selective mu-opioid agonist.
ECMO accidents: a survey of the incidence of mechanical failure and user error during extracorporeal membrane oxygenation.
The influence of sociopolitical, scientific, and technologic forces on the study and treatment of neonatal pain.
Maintenance sedation of agitated infants in the neonatal intensive care unit with chloral hydrate: new concerns.
A national survey of the assessment and treatment of pain and agitation in the neonatal intensive care unit.
Persistently low blood retinol levels during and after parenteral feeding of very low birth weight infants: examination of losses into intravenous administration sets and a method of prevention by addition to a lipid emulsion.
Evaluation of a pediatric multiple vitamin preparation for total parenteral nutrition in infants and children. I. Blood levels of water-soluble vitamins.
Evaluation of a pediatric multiple vitamin preparation for total parenteral nutrition. II. Blood levels of vitamins A, D, and E.
Intensive Care Units, Neonatal
Intensive Care, Neonatal